Giving Lavi Life:
"Gift_ Of_ Life_Fundraising is to help 18 months old Lavi who was diagnosed with Canavan Disease at age of 3 months.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically, he can see and hear -- defying the dire diagnosis, but unfortunately the existing drugs alone will not retard the progression of the disease.
The question for the parents was one: What else can we do to save Lavi?
Yulia and Gili assure that all the money raised will to fund the research.
They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.Thanks to all the love and support of people like you. All that it takes to save me and many other children is 7,000 more friends who will each give $18 (18 being 'alive', in Hebrew), and inviting 10 of their friends to do the same.
Can I count on your generosity?
Blessings Doreen Cohanim C.Ht
www.HypnoCruise.com"
Wednesday, December 9, 2009
Monday, December 7, 2009
לתת ללביא חיים | give2gether
Giving Lavi Life Doreen Cohanim
Gift_ Of_ Life_Fundraising is to help 18 months old Lavi who was diagnosed with Canavan Disease at age of 3 months. Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis, but unfortunately the existing drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi? Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child. Thanks to all the love and support of people like you. All that it takes to save me and many other children is 7,000 more friends who will each give $18 (18 being "alive", in Hebrew), and inviting 10 of their friends to do the same. Can I count on your generosity? Blessings
Doreen Cohanim C.Ht
http://www.hypnocruise.com/ Edit
Part 1 - Mom and Dad discovering the illness
About Dr. Paola Leone and the CGTC
Paola Leone, Ph.D.
Dr. Paola Leone is an Associate Professor of Neurosurgery and Director of the Cell & Gene Therapy Center (CGTC). As Principal Investigator at UMDNJ-Robert Wood Johnson Medical School for Gene Therapy for Canavan Disease, she leads all research activities at UMDNJ and the affiliated centers. Her research interests have included in vivo neurochemistry of epilepsy and gene transfer approaches for the treatment of neurological disorders. She has published extensively in the field of CNS gene therapy and conducted the first direct gene therapy trial using a liposome-based vector for a pediatric neurodegenerative disorder. In addition to applications of viral vectors and stem cells, Dr. Leone is studying pharmacological approaches in humans and in animal models of Canavan Disease, Amyotrophic Lateral Sclerosis, Tay Sach’s and other neurological disorders.
give2gether is a new way of doing good by simply harnessing your existing friends and social networks.
Now is the time to inspire your friends
Every one of us can make an impact, help and contribute. Here are a few ways to get involved - five steps on the road to a big breakthrough.
Q&A with Dr. Paola Leone
Question:
What is the Cell and Gene Therapy at UMDNJ/SOM?
Answer:
The Cell and Gene Therapy Center is a Translational Research Center, in which the scientists study in the laboratory methods that can be used in clinical settings using for instance either Stem Cells Therapy or Gene Therapy or both, in order to improve the health of patients affected by Canavan Disease or by other neurodegenerative disorders.
Question:
What are the current methods used to treat Canavan Disease?
Answer:
The current method is a pharmacological approach using a combination of drugs and supplements designed to benefit patients affected by Canavan Disease.The Stem Cell method is still undergoing investigation in the laboratory to test the “proof-of-principle” prior to use it for human applications.
Read More About Canavan Disease & Gene Therapy and Giving Lav's Life by clicking on the link.
לתת ללביא חיים give2gether
Gift_ Of_ Life_Fundraising is to help 18 months old Lavi who was diagnosed with Canavan Disease at age of 3 months. Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis, but unfortunately the existing drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi? Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child. Thanks to all the love and support of people like you. All that it takes to save me and many other children is 7,000 more friends who will each give $18 (18 being "alive", in Hebrew), and inviting 10 of their friends to do the same. Can I count on your generosity? Blessings
Doreen Cohanim C.Ht
http://www.hypnocruise.com/ Edit
Part 1 - Mom and Dad discovering the illness
About Dr. Paola Leone and the CGTC
Paola Leone, Ph.D.
Dr. Paola Leone is an Associate Professor of Neurosurgery and Director of the Cell & Gene Therapy Center (CGTC). As Principal Investigator at UMDNJ-Robert Wood Johnson Medical School for Gene Therapy for Canavan Disease, she leads all research activities at UMDNJ and the affiliated centers. Her research interests have included in vivo neurochemistry of epilepsy and gene transfer approaches for the treatment of neurological disorders. She has published extensively in the field of CNS gene therapy and conducted the first direct gene therapy trial using a liposome-based vector for a pediatric neurodegenerative disorder. In addition to applications of viral vectors and stem cells, Dr. Leone is studying pharmacological approaches in humans and in animal models of Canavan Disease, Amyotrophic Lateral Sclerosis, Tay Sach’s and other neurological disorders.
give2gether is a new way of doing good by simply harnessing your existing friends and social networks.
Now is the time to inspire your friends
Every one of us can make an impact, help and contribute. Here are a few ways to get involved - five steps on the road to a big breakthrough.
Q&A with Dr. Paola Leone
Question:
What is the Cell and Gene Therapy at UMDNJ/SOM?
Answer:
The Cell and Gene Therapy Center is a Translational Research Center, in which the scientists study in the laboratory methods that can be used in clinical settings using for instance either Stem Cells Therapy or Gene Therapy or both, in order to improve the health of patients affected by Canavan Disease or by other neurodegenerative disorders.
Question:
What are the current methods used to treat Canavan Disease?
Answer:
The current method is a pharmacological approach using a combination of drugs and supplements designed to benefit patients affected by Canavan Disease.The Stem Cell method is still undergoing investigation in the laboratory to test the “proof-of-principle” prior to use it for human applications.
Read More About Canavan Disease & Gene Therapy and Giving Lav's Life by clicking on the link.
לתת ללביא חיים give2gether
Wednesday, December 2, 2009
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dear Friends, Please Help Fundraising To Save Lavi's Life....
Dec. 2st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease. At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration.
This was the first hopeful sign.Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process."Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease.
While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition. The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.”Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.This couldn't deter the courageous parents.
They decided to go fund raising for the complementary funds.They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim C.Ht
Please join me for Levi's Distance Healing and Prayer by clicking on the inner child link.
http://specialchild.ning.com
Dec. 2st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease. At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration.
This was the first hopeful sign.Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process."Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease.
While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition. The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.”Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.This couldn't deter the courageous parents.
They decided to go fund raising for the complementary funds.They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim C.Ht
Please join me for Levi's Distance Healing and Prayer by clicking on the inner child link.
http://specialchild.ning.com
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dear Friends, Please Help Fundraising To Save Lavi's Life....
Dec. 1st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease.
At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.
Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration. This was the first hopeful sign.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process.
"Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease. While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition. The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.”
Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.
This couldn't deter the courageous parents. They decided to go fund raising for the complementary funds.
They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.
Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.
“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim C.Ht
PLEASE HELP!
Save Lavi's Life
Any donation is a blessing, your amount and name will be posted on Inner Child Page
Free Free To contact me via email or via my link below as how you can donate.
Also join us for Distance Energy Healing...
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dec. 1st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease.
At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.
Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration. This was the first hopeful sign.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process.
"Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease. While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition. The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.”
Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.
This couldn't deter the courageous parents. They decided to go fund raising for the complementary funds.
They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.
Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.
“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim C.Ht
PLEASE HELP!
Save Lavi's Life
Any donation is a blessing, your amount and name will be posted on Inner Child Page
Free Free To contact me via email or via my link below as how you can donate.
Also join us for Distance Energy Healing...
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dear Friends, Please Help Fundraising To Save Lavi's Life....
Dec. 1st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease.
At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.
Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration. This was the first hopeful sign.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process.
"Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease. While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition.
The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.” Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.
This couldn't deter the courageous parents. They decided to go fund raising for the complementary funds.
They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.
Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.
“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim
PLEASE HELP!
Save Lavi's Life
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=10181857
Any donation is a blessing, your amount and name will be posted here....
Free Free To contact me via email or via my website.
Also join us for Distance Energy Healing...
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dec. 1st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease.
At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.
Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration. This was the first hopeful sign.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process.
"Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease. While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition.
The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.” Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.
This couldn't deter the courageous parents. They decided to go fund raising for the complementary funds.
They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.
Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.
“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim
PLEASE HELP!
Save Lavi's Life
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=10181857
Any donation is a blessing, your amount and name will be posted here....
Free Free To contact me via email or via my website.
Also join us for Distance Energy Healing...
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dear Friends, Please Help Fundraising To Save Lavi's Life....
Dec. 1st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease.
At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.
Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration. This was the first hopeful sign.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process.
"Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease. While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition. The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.”
Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.
This couldn't deter the courageous parents. They decided to go fund raising for the complementary funds.
They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.
Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.
“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim C.Ht
www.HypnoCruise.com
PLEASE HELP!
Save Lavi's Life
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=10181857
Any donation is a blessing, your amount and name will be posted here....Free Free To contact me via email or via my website.Also join us for Distance Energy Healing...
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Dec. 1st, 2009 – Yulia and Gili Ben-Moshe, who live in a small town in Israel, were confronted with every parent’s nightmare: their third child, Lavi then three months old, was diagnosed with Canavan Disease.
At the first moment they didn't understand what it means, but after a short while they learned that children with Canavan disease first lose their sense of sight, then their hearing and their motor function. Usually, before age 4, the disease kills off their brain cells and the children die.
It took them 24 hours to start the war to save Lavi. They went online and found Dr. Paola Leone, the leading American expert on Canavan disease. They realized that Dr. Leone, works out of the UMDNJ-Robert Wood Johnson Medical School, is developing innovative treatments for Canavan patients.
Ten days later the couple was on a plane on its way to the US. They met with Dr. Leone who put Lavi on her pharmacologic therapies, which resulted in delaying his brain deterioration. This was the first hopeful sign.
Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis.But unfortunately the existing Drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi?
While staying in New Jersey, they learned that Dr. Leone is conducting basic scientific stem cell research that holds hope for Canavan patients. Since the disease kills off brain cells, Dr. Leone believes that implanting stem cells into the brains of children with Canavan would result in the proliferation of functional brain cells. She is now testing her theory in the laboratory, and intends clinic testing as soon as she scientifically proves the efficacy and the safely of the stem cell treatment. The clinical protocol to use stems cells to treat Canavan patients should be approved within 24 months by the Food and Drug Administration. The subsequent clinical trial would include 15 children with Canavan Disease.
Yulia and Gili Ben Moshe decided to approach Dr. Leone and asked her to put Lavi on the testing group of the new process.
"Lavi's psycho-motor development has been improving greatly since the pharmacological therapy began,” says Leone. “The therapy is preserving his brain but is not curing the disease. While Lavi and many other children are struggling to change their prognosis, scientists are working incessantly in my laboratory to bring a cure to fruition. The timing and success of a cure for Canavan Disease fully depends upon the availability of appropriate research funds that would also model the cure for other neurodegenerative diseases.”
Dr. Leone’s research is funded only partially by the government. For her research to be completed and approved, she needs an estimated $ 1.5 million.
This couldn't deter the courageous parents. They decided to go fund raising for the complementary funds.
They first started in Israel, where they raised the money for Lavi's medical treatments, and then they decided to start an international appeal. They partnered with an Israeli start-up, called give2gether, which developed an innovative platform for micro-philanthropy. They built a website which chronicles Lavi’s life Journey, and enables grass roots fundraising.
Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child.
“It’s a very hard for my wife and me to face this ordeal,” says Gili Ben Moshe, “but Lavi came into this world with a purpose. We believe it’s our privilege to fight for Lavi’s life and for the lives of other children who have this lethal disease.”
Blessings Doreen Cohanim C.Ht
www.HypnoCruise.com
PLEASE HELP!
Save Lavi's Life
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=10181857
Any donation is a blessing, your amount and name will be posted here....Free Free To contact me via email or via my website.Also join us for Distance Energy Healing...
Please Help With This Fundraising To Save Lavi's Life.... - My Special Inner Child
Thursday, November 26, 2009
בקשות ותפילות - Thursday (November 26th)
"השעה התשיעית הוא זמן של חגיגה ושמחה, היא שעת מנחה. דעו כי השנה התשיעית של היובל הוא נבחר, ואת בחודש התשיעי (כסלו) הוא החודש הטוב ואת התשוקה, ואת היום התשיעי החודש התשיעי הוא יום משובח מכל שאר ימי החודש, ואת התשיעית של שעה ביום התשיעי של החודש התשיעי הוא הנבחר ביותר ".זה נכתב על ידי הרב אברהם Marimon HaSfaradi, zs'kl, את ספר ברית מנוחה.הרב אברהם אזולאי, zs'kl, כתב Le'Avraham חסד, "ראיתי את ספר ברית מנוחה כי בחודש התשיעי ביום התשיעי על השעה התשיעית זוהי תקופה של הצלחה גדולה ואת הסיבה לכך היא כי הוא את הגלגל התשיעי של יסוד ומהווה צינור השפע ".הרמב"ן כותב כי השנה התשיעית של יובל, על החודש התשיעי, ביום התשיעי, בשעה התשיעית הוא זמן של מיוחדת.את השעה המדויקת היא ביום חמישי אחר הצהריים, 9 כסלו בין שעה של PM 1:43 ו 1:56. (2-3 בניו יורק) זהו זמן של רצון כאשר כל השערים של שמים פתוחים.זה חלון הזדמנויות נדיר מאוד, כאשר כל השערים של שמים פתוחים בתפילותינו הצרכים; לנצל נדירים אלה 13 דקות של רצון להתפלל על כל הרצונות שלך במיוחד עבור עם ישראל להיות zoche לראות את הגאולה, אמן!
May Hashem grant all our tefilot and bakashot
אמן
Israel from 1:43pm to 1:56pm
New York from 2:07pm to 2:55pm
Miami from 2:44pm to 3:42pm
Chicago from 1:56pm to 2:47pm
Los Angeles from 2:15pm to 3:03pm
בקשות ותפילות - My Special Inner Child
"The ninth hour is the time of celebration and rejoicing, it is the hour of Mincha.Know that the ninth year of the Jubilee is the chosen, and the ninth month (Kislev) is the month of goodness and desire, and the ninth day of the ninth month is the choicest day from all the rest of the days of the month, and the ninth hour of the ninth day of the ninth month is the most chosen".
This was written by Rabbi Avraham Marimon HaSfaradi, zs'kl, in the Sefer ברית מנוחה.Rabbi Avraham Azulai, zs'kl, wrote in Chesed Le'Avraham, "I saw in the Sefer ברית מנוחה that the ninth month in the ninth day on the ninth hour is a time of great success and the reason for this is because it is the ninth wheel of the Yesod and is a pipe of abundance".
The Ramban writes that the ninth year of the Jubilee, on the ninth month, on the ninth day, in the ninth hour is time of special will.
The exact time is Thursday afternoon, 9th of Kislev between the hour of 1:43 pm and 1:56 pm. (2PM-3PM in NYC) It is a time of will when all the gates of Shamayim are open.This window of opportunity is very rare when all the gates of Shamayim are open to our prayers and needs; utilize these rare 13 minutes of will to pray for all your desires and especially for Am Israel to be zoche to see the redemption,
May Hashem grant all our tefilot and bakashot...
May Hashem grant all our tefilot and bakashot
אמן
Israel from 1:43pm to 1:56pm
New York from 2:07pm to 2:55pm
Miami from 2:44pm to 3:42pm
Chicago from 1:56pm to 2:47pm
Los Angeles from 2:15pm to 3:03pm
בקשות ותפילות - My Special Inner Child
"The ninth hour is the time of celebration and rejoicing, it is the hour of Mincha.Know that the ninth year of the Jubilee is the chosen, and the ninth month (Kislev) is the month of goodness and desire, and the ninth day of the ninth month is the choicest day from all the rest of the days of the month, and the ninth hour of the ninth day of the ninth month is the most chosen".
This was written by Rabbi Avraham Marimon HaSfaradi, zs'kl, in the Sefer ברית מנוחה.Rabbi Avraham Azulai, zs'kl, wrote in Chesed Le'Avraham, "I saw in the Sefer ברית מנוחה that the ninth month in the ninth day on the ninth hour is a time of great success and the reason for this is because it is the ninth wheel of the Yesod and is a pipe of abundance".
The Ramban writes that the ninth year of the Jubilee, on the ninth month, on the ninth day, in the ninth hour is time of special will.
The exact time is Thursday afternoon, 9th of Kislev between the hour of 1:43 pm and 1:56 pm. (2PM-3PM in NYC) It is a time of will when all the gates of Shamayim are open.This window of opportunity is very rare when all the gates of Shamayim are open to our prayers and needs; utilize these rare 13 minutes of will to pray for all your desires and especially for Am Israel to be zoche to see the redemption,
May Hashem grant all our tefilot and bakashot...
Subscribe to:
Posts (Atom)
