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Monday, December 7, 2009

לתת ללביא חיים | give2gether

Giving Lavi Life Doreen Cohanim

Gift_ Of_ Life_Fundraising is to help 18 months old Lavi who was diagnosed with Canavan Disease at age of 3 months. Today, at 18 months, Lavi is considered a medical miracle. He is progressing neurologically – he can see and hear -- defying the dire diagnosis, but unfortunately the existing drugs alone will not retard the progression of the disease. The question for the parents was one: What else can we do to save Lavi? Yulia and Gili assure that all the money raised will to fund the research. They hope that each donor will tell Lavi's story to at least 10 friends, and this way, even with small donations they will be able to raise the necessary funds to save their child. Thanks to all the love and support of people like you. All that it takes to save me and many other children is 7,000 more friends who will each give $18 (18 being "alive", in Hebrew), and inviting 10 of their friends to do the same. Can I count on your generosity? Blessings

Doreen Cohanim C.Ht Edit

Part 1 - Mom and Dad discovering the illness
About Dr. Paola Leone and the CGTC

Paola Leone, Ph.D.
Dr. Paola Leone is an Associate Professor of Neurosurgery and Director of the Cell & Gene Therapy Center (CGTC). As Principal Investigator at UMDNJ-Robert Wood Johnson Medical School for Gene Therapy for Canavan Disease, she leads all research activities at UMDNJ and the affiliated centers. Her research interests have included in vivo neurochemistry of epilepsy and gene transfer approaches for the treatment of neurological disorders. She has published extensively in the field of CNS gene therapy and conducted the first direct gene therapy trial using a liposome-based vector for a pediatric neurodegenerative disorder. In addition to applications of viral vectors and stem cells, Dr. Leone is studying pharmacological approaches in humans and in animal models of Canavan Disease, Amyotrophic Lateral Sclerosis, Tay Sach’s and other neurological disorders.

give2gether is a new way of doing good by simply harnessing your existing friends and social networks.

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Every one of us can make an impact, help and contribute. Here are a few ways to get involved - five steps on the road to a big breakthrough.

Q&A with Dr. Paola Leone

What is the Cell and Gene Therapy at UMDNJ/SOM?

The Cell and Gene Therapy Center is a Translational Research Center, in which the scientists study in the laboratory methods that can be used in clinical settings using for instance either Stem Cells Therapy or Gene Therapy or both, in order to improve the health of patients affected by Canavan Disease or by other neurodegenerative disorders.

What are the current methods used to treat Canavan Disease?
The current method is a pharmacological approach using a combination of drugs and supplements designed to benefit patients affected by Canavan Disease.The Stem Cell method is still undergoing investigation in the laboratory to test the “proof-of-principle” prior to use it for human applications.

Read More About Canavan Disease & Gene Therapy and Giving Lav's Life by clicking on the link.
לתת ללביא חיים give2gether

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